Down the Rabbit Hole And Back Again With VM and SSCD

Karen Hannafious-ChaponMy Migraine Blog, Share Your Story

Down Rabbit Hole Vestibular Migraine SSCD Balance Disorders

The constant reverberation in my head was “what am I doing here?” It’s funny, and not “haha” funny, more like “what the heck?” funny……what life throws at you. But everyone has their respective battles, some worse than others. And these struggles change you, morph you, mold you, challenge you, make you into a different person, skew your perception of good and bad. … Read More!

4 Strategies For Managing Dietary Migraine Triggers

Kelley NunnMy Migraine Blog, My Vestibular Migraine Recovery

Managing Migraine Trigger Avoidance Diet Vestibular Migraine

Identifying and avoiding my dietary migraine triggers has been one of the single most effective treatments in my vestibular migraine recovery. In this post, I’ll be talking about how I was first introduced to the migraine trigger avoidance diet, and the four steps I took to learn about the diet, identify my triggers, and get my abnormal brain activity back under control… … Read More!

Not The Normal Dizzy

Karen Hannafious-ChaponMy Migraine Blog, Share Your Story

Man With Dizziness Vertigo Vestibular Migraine SSCD

I never had any health problems, nothing major at least. I’ve been blessed in that regard. However, I’ve been blessed with inner strength and boy was that tried and tested the past several years, when my husband became not so much of the person I married but a person who would have dreams of being spun backwards and wake up so dizzy he couldn’t stand up… Read More!

How I Transitioned From Bedridden To Working Full Time With Vestibular Migraine in 6 Steps

Kelley NunnMy Migraine Blog

Featured Image Bedridden to Full Time - Working With Vestibular Migraine and POTS

In my time as a POTSy vestibular migraineur, I’ve read an awful lot of posts from other people who say that they’ll never be able to work again with migraine. And while I absolutely respect every person’s expectations of what they are physically capable of accomplishing in living with chronic illness, I knew that this would never be enough for me. … Read More!

Growing Up With Migraines

Tanya CrossmanMy Migraine Blog, Share Your Story

Tanya Crossman Then And Now Growing Up With Migraine

I started getting migraines when I was eight or nine years old, not long after the first time my family moved. They really ratcheted up the next year; I had issues with my fifth grade teacher, and the stress resulted in a particularly bad migraine year.

During migraines I went deathly pale, vomited until there was nothing left in my stomach (then vomited up bile), and despairingly cried myself to sleep as up to 12 hours of blinding pain like a vice seemed to push every other thought out of my head. … Read More!

Vestibular Migraine: The Dizzy Monster in My Spouse

Katherine SeatMy Migraine Blog, Share Your Story

Vestibular Migraine: The Dizzy Monster In My Spouse Featured Image

“Sorry I can’t come, my husband is dizzy.” It sounds ridiculous. Why would I need to cancel something just because my husband is a bit dizzy? And people’s natural response sound ridiculous to me: “Ok, make sure he drinks enough water.” When we arrived in Australia, we expected reentry/culture shock. We knew we were going to be in a different world and that that would mean stress and disorientation… … Read More!

The Surprising Ups and Downs of Living with Vestibular Migraine

Camille MarksMy Migraine Blog, Share Your Story

The Winding Road: Ups and Downs of Living With Vestibular Migraine Disorder

Camille Marks shares her story about the ups and downs of living with vestibular migraine in hopes of raising awareness of this debilitating neurological disease. Learn how Camille reached the vestibular migraine diagnosis, how doctors believed a brain tumor was causing her symptoms, and what she’s learned in her life post-diagnosis. … Read More!

“Coming Out” With Vestibular Migraine

Jessica JonesMy Migraine Blog, Share Your Story

An Open Letter to My Family & Friends About Vestibular Migraine by Jessica Jones

Instead of opening a gift for my birthday, I want to open up about something. I have a chronic vestibular disorder. I’ve unknowingly been suffering from migraines that have been damaging my balance system. I’ve been living with constant unsteady vision since 2011, and become increasingly prone to vertigo and motion sickness since I can remember. This condition has effected my entire physiology. Migraineurs don’t just lie in a dark room for hours or days and then return to normal. There are many different types of migraines and seemingly endless ways to suffer from them. … Read More!

The Stigma of Dizziness

Kelley NunnMy Migraine Blog

Crazy Because I'm Dizzy - The Stigma of Vestibular Migraine

If you’ve got dizziness, and especially if you’re a woman, you’ve probably run into people who don’t believe your symptoms are real. These people– doctors, family members, friends, co-workers– can be so quick to judge and determine that this debilitating, life-altering symptom is “all in your head,” just a figment of your imagination. … Read More!

Vestibular Migraine Diagnosis & Treatment Podcast with Dr. Carol Foster by the APTA

Kelley NunnMy Migraine Blog

Vestibular Migraine Symptoms, Diagnosis, and Treatment Podcast from the APTA with Dr. Carol Foster

Earlier this week, I hit the jackpot in finding a somewhat ‘old’ podcast recording from the American Physical Therapy Association recorded in June, 2013, in which Dr. Carol Foster, Director of the Balance Laboratory at the University of Colorado Hospital, discusses all-things vestibular migraine. The interview downright knocked my socks off– there were Dr. Foster gave so many informative answers, some of which on topics I had never heard of! The final topic of the interview, specifically, blew me away. … Read More!

Take the (Vestibular) Migraine Awareness Month Challenge

Kelley NunnMy Migraine Blog

Ask Me About Vestibular Migraine

June is (Vestibular) Migraine Awareness Month! With an estimated 6 million undiagnosed or untreated vestibular migraineurs in the U.S. alone, it’s critical that we spread the word to help reduce the unnecessary suffering endured by dizzy migraineurs. Help us in our mission to raise awareness about vestibular migraine by taking the awareness challenge! … Read More!

Discovering the “Vestibular Migraine Experience” Device

Kelley NunnMy Migraine Blog

Beach House On Stilts - Feeling the Vestibular Migraine Sway

Recently, Excedrin Migraine came out with a new device, seen in the video above, that emulates the migraine aura experience such that non-migraineurs can experience the “more than just a headache” aspects of a migraine. And that got me thinking. It would be incredible to be able to show non-migraineurs the vestibular migraine experience! The constant rocking, not quite understanding where you are in space, difficulty walking, room spinning, etc. Imagine if our significant others, friends, family, and co-workers could actually experience these vestibular migraine symptoms! … Read More!

Finding Support in the Vestibular Migraine Diagnosis

Kelley NunnMy Migraine Blog

My Migraine Brain Facebook Page - Bi-Weekly Questions for Discussion for Vestibular Migraineurs

I’ve been thinking a lot recently about the lack of online support communities for vestibular migraineurs. You know, places for us to come together and talk about navigating through, coping with, and thriving despite our chronic illness. As such, I’ve put together a few new online support groups for vestibular migraineurs to take part in discussions about our health and lives in general. Join me in creating a support network for vestibular migraineurs! … Read More!